6 年前
视频简介
进行性肌肉营养不良症,是一种比癌症更可怕的病,一般四五岁发病,12岁瘫痪,18岁死亡,几乎没有特例……长江边上的小城江吉,平静安宁。双胞胎兄弟金豆银豆一家就生活在这里。在一次寻常的体育课后,九岁的金豆银豆同时被检查出患上了绝症——进行性肌营养不良症,他们的肌肉正在一天天被病魔所吞噬,随之而来的将是不可逆转的无力、萎缩直至瘫痪、呼吸衰竭和死亡……。First-time feature filmmaker Rebeca “Beba” Huntt undertakes an unflinching exploration of her own identity in the remarkable coming-of-age documentary/cinematic memoir BEBA. Reflecting on her childhood and adolescence in New York City as the daughter of a Dominican father and Venezuelan mother, Huntt investigates the historical, societal, and generational trauma she’s inherited...。
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国学